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#1
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From: "PlacidBull"
"All last week I have not been well. Tired, fatigued, weakness, pain with Fibro worse, the joint pain." Sunshyne ... are you saying Fibro as in fibromyalgia? Yes, fibromayglia. I also have degenerative disk disease, cervical and lumbar hernitated disks. |
#2
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From: "PlacidBull"
ah, ... has it ever been suggested before that perhaps you suffer from hyperchondria? The physical symptoms are always real, but might be "normal" physical signs which are misinterpreted as more dangerous than they really are. Placid Placid. There are also others that have a diagnoisis of Fibromyalgia also in here. I would like the others with the same illness as me, to step up to the plate on this one. We are not hyperchondiacs. I am sure there are a few of them out there though, that fit the description you gave. Of course we may seem like we are. That is understandable. We do have weird symptoms, we do have physical pain. We do look normal to others. I do understand also, there are doctors out there that do not believe in Fibromyalgia also. Fibromyalgia also runs hand in hand at times. With other disorders and diseases. Lupus, MS, Arthritis. Many auto-immune disease's and disorders. I have studied FM. At times FM is diagnosed, and at a later time, a different diagnosis is obtained, when new symptoms appear. I take it as a insult. That you have implyed that the symptoms I listed in the OP, are also due to your perception of me being a hyperchondriac. Also, I have other chronic pain conditions along with Fibromyalgia. Are those in my head too, with your perceptions? I am on a low carb dieting plan. A way of eating. I have alot of pain, and illness problems. I come here for support on dieting. I also come here for ways to improve my pain and illness with improvements on dieting. Got a problem with that? |
#3
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Did anyone call in an infectious disease specialist? Painful joints along
with your other symptoms are frequent with the various tick borne diseases, for example. It's a very unreasonable stretch to think that a sudden, acute illness with multiple symptoms was brought on by a diet you've been on for a lengthy period. Susan I go to a low cost health clinic. I have no health insurance. I go to the doctor again on Monday. Hopefully we will be able to get referrals out, to affordable specialists. I do have a appt. coming for a Rheumatologist. I am trying to look at all angles. Yes, I have been on the diet for 7-8 months. I did see big improvement on my health. IBS did clear up. I did feel better. I was able to exercise. The last few weeks. The last part of this summer. I have been really sick. I havn't been able to do much at all. Eating certain meats, can cause Gout symptoms in some people. Dehydration also. Thanks for the input, greatly appreciated. I will bring the suggestions up with my doctor next week. |
#4
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Fibromayglia = hypochondria.
HTH -- Most people are dumb as bricks; some people are dumber than that. -- MFW "Sunshyne" wrote in message ... From: "PlacidBull" "All last week I have not been well. Tired, fatigued, weakness, pain with Fibro worse, the joint pain." Sunshyne ... are you saying Fibro as in fibromyalgia? Yes, fibromayglia. I also have degenerative disk disease, cervical and lumbar hernitated disks. |
#5
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Sunshyne wrote:
||| Did anyone call in an infectious disease specialist? Painful ||| joints along with ||| your other symptoms are frequent with the various tick borne ||| diseases, for example. ||| ||| It's a very unreasonable stretch to think that a sudden, acute ||| illness with multiple symptoms was brought on by a diet you've been ||| on for a lengthy period. ||| ||| Susan ||| ||| || || I go to a low cost health clinic. I have no health insurance. I go || to the doctor again on Monday. Hopefully we will be able to get || referrals out, to affordable specialists. || || I do have a appt. coming for a Rheumatologist. || || I am trying to look at all angles. Yes, I have been on the diet for || 7-8 months. I did see big improvement on my health. IBS did clear || up. I did feel better. I was able to exercise. The last few weeks. || The last part of this summer. I have been really sick. I havn't been || able to do much at all. || || Eating certain meats, can cause Gout symptoms in some people. || Dehydration also. || || || Thanks for the input, greatly appreciated. I will bring the || suggestions up with my doctor next week. || When you bring this up with your doctor, don't mention Atkins...just tell him/her you've removed/reduced starchy foods, sugar & flour products, and junk good. |
#7
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I have chondrosarcoma. I have had my pelvis, hip, and leg removed. I have
experienced pain on a level of 9.5 out of ten over a two year period. I am not impervious to the pains of others. The one lesson I learned was "do not ask how do I get rid of the pain?" ask instead "what is causing the pain?" I have also met those who complain incessently, go from one doctor to another, from one emergency room to another, pop one pain medication after another and label it fibromyalgia. If you have a pain, do not label it fibromyalgia. Find out WHAT it is and then pursue its correction. Just my opinion of course. Placid "Saffire" wrote in message .. . In article , says... From: "PlacidBull" ah, ... has it ever been suggested before that perhaps you suffer from hyperchondria? The physical symptoms are always real, but might be "normal" physical signs which are misinterpreted as more dangerous than they really are. Placid Placid. There are also others that have a diagnoisis of Fibromyalgia also in here. I would like the others with the same illness as me, to step up to the plate on this one. We are not hyperchondiacs. I am sure there are a few of them out there though, that fit the description you gave. I have been diagnosted by a rheumatologist as having fibromyalgia. I don't think my case is as strong as Sunshyne's, but I don't doubt it as a diagnosis. I was ALREADY treating OTHER things with the same recommendations the rheumatologist gave me for the fibromyalgia, so the diagnosis didn't have much of an impact on me other than to frustrate me as to it's vagueness. Sunshyne was also recently in a car accident (and had one a few years ago, as I recall), and has some very REAL injuries to deal with, an being overweight only makes things worse. It never ceases to amaze me how people who are NOT afflicted with multiple medical problems so blythely dismiss those who are. I had an (older) allergy doctor once say he thought it was all in my head because I had too many physical problems for someone my age. I pointed out that I had a) fallen down some stairs, which led to chronic back problems, exacerbated, no doubt, by the fact that my right leg is 3/4" shorter than the left one and the right foot is two FULL sizes smaller than the left one AND only has 4 toes on it, b) had wrist injuries that required SURGERY, and c) took several medications (including some prescribed by HIM) that not only gave me severe dry mouth, but also dried out my sinuses, leading to frequent sinus infections, which was why I was there to see him that day. How can fever and pus be considered due to hypOchondria? That shut HIM up and he DID prescribe an antibiotic. Sheesh! HE was the one who told ME that I was "super allergic" based on the tests HE administered, and said that I should never have a pet of any kind with fur or feathers because even if I WASN'T allergic to it at the time, I would BECOME allergic to it within 6 months. Of all the trees and grasses he tested me for, I was more than a little allergic to all but two of them. He couldn't believe I had waited so long to be tested for allergies. Some people have autoimmune problems and some people don't. I happen to be one who DOES. I AM more sensitive in some areas than others because of that. I can often sense low-level earthquakes when others cannot -- I can sense when a floor in a room is not level when others do not. Low-grade fevers REALLY knock me for a loop, causing EXTREME fatigue. I had a lupus antibody detected back in 1991 during a ANA panel when an immunologist at Stanford was trying to rule out autoimmune problems regarding the acute pain in my wrist. Why did I eventually go to a rheumatologist? It wasn't MY idea -- another doctor referred me based on my sensitivities, just to rule some things out. I was very surprised when the rheumatologist told me she thought I had fibromyalgia based on (I think) 11 out of 18 specific symptoms. I've had one doctor think a specific pain was no big deal and another doctor say they couldn't BELIEVE I had waited so long to see someone about the very same pain. I long ago realized that most doctors are incredibly bored with what they perceive as average, unremarkable problems, especially if the cause isn't obvious, and they really only perk up when someone comes in with something dramatic and obvious, like an arrow through the forehead. Pain from chronic joint inflammation is VERY real. Bleeding from the rectum is CERTAINLY VERY real. People have different levels of tolerance for pain and illness for a myriad of reasons, and that's a fact. You know what I wish on my one TRUE enemy, the only person in the world that I really, truly HATE? Death? No. Acid in the face? No. Stab or gunshot wounds? No. Terminal illness? No. What I wish on her is every chronic physical problem *I* have ... and just a *little* bit more. -- Saffire 205/149/125 - 5'1.5" Atkins since 6/14/03 Progress photo: http://photos.yahoo.com/saffire333 |
#8
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Your doctor is an idiot. Over 8 million Americans alone are diagnosed with Fibromyalgia (mostly women) and the numbers are rising every day. In 1987, the American Medical Association recognized fibro as a true illness and it's a MAJOR cause of disability in this world. Unfortunately when some docs get out of school, that's where their education ends. If you're fortunate enough not to have it, then I'd get on my knees and thank the Lord or whoever you're grateful to in life that you don't. Those of us who ARE unfortunate enough to have it certainly would rather NOT. The latest research shows that staying away from processed carbs, such as white sugar, flours, etc...........is a good diet for folks with fibro so I'm not surprised that there are several folks in this group with it. I'm a daily lurker here and post seldom but I would think that this being a support group that folks would want to UPHOLD their posters instead of making them feel worse than they already do. Just my 2 cents. Sunshyne......you certainly have MY sympathy and support.........the fibro group here on usenet is full of some really nice folks (along with some trolls but that's no different than here) if you're looking for information that will help you with dealing with the fibromyalgia/pain/lack of sleep issues.........and there's a scientist named Devin Starlanyl who also has this and has written several wonderful books on it. here is her link to her site: http://www.sovernet./~destar I read the post you made, PlacidBull, where you said you yourself have some pain issues........all the more reason that I'd think you'd wanna support others in pain rather than accuse them of being hypochondriacs...........again just my opinion. Worth about as much as yours. A Lurker "PlacidBull" wrote in message ... Yes, Sunshyne, My doctor friends have told me that the medical profession uses the term fibromyalgia as a code word to signify patients who are suffering from hypocondria. Whenever someone tells them that they have been diagnoised with fibromyalgia, the medical professional's response is ... hmmm ... yes ... I understand. Placid "Sunshyne" wrote in message ... From: "PlacidBull" ah, ... has it ever been suggested before that perhaps you suffer from hyperchondria? The physical symptoms are always real, but might be "normal" physical signs which are misinterpreted as more dangerous than they really are. Placid Placid. There are also others that have a diagnoisis of Fibromyalgia also in here. I would like the others with the same illness as me, to step up to the plate on this one. We are not hyperchondiacs. I am sure there are a few of them out there though, that fit the description you gave. Of course we may seem like we are. That is understandable. We do have weird symptoms, we do have physical pain. We do look normal to others. I do understand also, there are doctors out there that do not believe in Fibromyalgia also. Fibromyalgia also runs hand in hand at times. With other disorders and diseases. Lupus, MS, Arthritis. Many auto-immune disease's and disorders. I have studied FM. At times FM is diagnosed, and at a later time, a different diagnosis is obtained, when new symptoms appear. I take it as a insult. That you have implyed that the symptoms I listed in the OP, are also due to your perception of me being a hyperchondriac. Also, I have other chronic pain conditions along with Fibromyalgia. Are those in my head too, with your perceptions? I am on a low carb dieting plan. A way of eating. I have alot of pain, and illness problems. I come here for support on dieting. I also come here for ways to improve my pain and illness with improvements on dieting. Got a problem with that? |
#9
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In article ,
says... I have chondrosarcoma. I have had my pelvis, hip, and leg removed. I have experienced pain on a level of 9.5 out of ten over a two year period. I am not impervious to the pains of others. The one lesson I learned was "do not ask how do I get rid of the pain?" ask instead "what is causing the pain?" I have also met those who complain incessently, go from one doctor to another, from one emergency room to another, pop one pain medication after another and label it fibromyalgia. If you have a pain, do not label it fibromyalgia. Find out WHAT it is and then pursue its correction. Just my opinion of course. Then you DO know what it's like to have chronic pain, and if you had symptoms for a long time before it was diagnosed and treated, it's likely that you AND a doctor initially thought that whatever was causing your symptoms was due to a virus and/or a minor or even unknown injury and attributed it to something else. Pain you have NOW might be attributed to your cancer and subsequent treatment, even if it's actually being caused by something ELSE. *I* didn't label my pain fibromyalgia -- a DOCTOR did. I also know of specific injuries that caused most of my chronic pain. When I don't know, I try to find out. Frankly, I HATE having a label like that because it IS such a catch-all and, as such, DOCTOR'S tend to blame problems on THAT instead of trying to LOOK for the cause. In fact, I usually don't even TELL doctors that I've been diagnosed with it. I also have multiple chemical sensitivities, and I know what caused THAT, too. Unfortunately, that, too, is a catch-all, so sometimes I don't know if I'm coming down with something, or if I'm being exposed to a chemical to which I'm reacting -- I only know for sure if it gets better if I change or get away from my environment, unless I get a sudden hot flush across my nose and cheeks (aka a "butterfly rash"), in which case I KNOW it's chemically related. If it's really bad (being exposed to a lot of copier toner, for instance), my entire face will turn cherry red. Some things cause this relatively mild reaction (newsprint, phenol, formaldahyde) and some cause flu-like symptoms and/or debilitating fatigue (pesticides, new furniture). Some doctors don't believe in MCS and label IT hypochondria when it is, sometimes MEASURABLY, an inappropriate auto-immune system response. I see your point and I'm trying to make my own, which is that some people are more sensitive than others, some physical problems are more obvious than others and just because a doctor doesn't know what's wrong, it doesn't mean that someone is just MAKING IT UP, which is what YOU are saying when you use the word "hypochondria". In fact, you seem to be applying it to a situation that is a catch-22. Is a person making something up or trying to find out the cause of their problem when they go from doctor to doctor because they are in pain that's not getting any better and the doctor's don't know WHY or blame it on something that may or may not be causing it but don't want to bother to look further? Sounds like the patient is damned if they do and damned if they don't. -- Saffire 205/149/125 - 5'1.5" Atkins since 6/14/03 Progress photo: http://photos.yahoo.com/saffire333 |
#10
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"Sunshyne" wrote in message ... From: "PlacidBull" ah, ... has it ever been suggested before that perhaps you suffer from hyperchondria? The physical symptoms are always real, but might be "normal" physical signs which are misinterpreted as more dangerous than they really are. Placid Placid. There are also others that have a diagnoisis of Fibromyalgia also in here. I would like the others with the same illness as me, to step up to the plate on this one. We are not hyperchondiacs. I am sure there are a few of them out there though, that fit the description you gave. Well I'm one of them Sunshyne. When I was diagnosed with fibromyalgia, I had never heard of it. My doctor explained a lot to me and encouraged me to learn as much as I could about it so we could work together. Because he was concerned about the symptoms, he also sent me to a rheumatologist to be examined and tested for that and other things. The rheumatologist confirmed the fibromyalgia. If either of them thought I was a hypochondriac, the whole matter would have been dropped and he certainly wouldn't have wasted any more of his (or the rheumatologist's) time. Also, if my doctor thought I was a hypochondriac he'd tell me! Both of them were very sympathetic and helpful. My GP worked with me on finding the right meds to help with sleep problems and pain. He explained what seemed to work with fibromyalgia and why and we experimented to see what was most helpful for me. He also sent me to a physical therapist and the rheumatologist later set it up for me to have hydrotherapy at the local hospital. This taught me how to help deal with the pain and stiffness by exercising. People who think fibromalgia = hypochondria need to educate themselves. I'd say I wouldn't wish it on such people, but that wouldn't be the truth. |
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