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  #1  
Old August 28th, 2004, 05:15 PM
Sunshyne
external usenet poster
 
Posts: n/a
Default

From: "PlacidBull"

"All last week I have not been well. Tired, fatigued, weakness, pain with
Fibro worse, the joint pain."

Sunshyne ...

are you saying Fibro as in fibromyalgia?


Yes, fibromayglia. I also have degenerative disk disease, cervical and lumbar
hernitated disks.


  #2  
Old August 28th, 2004, 06:01 PM
Sunshyne
external usenet poster
 
Posts: n/a
Default

From: "PlacidBull"
ah, ... has it ever been suggested before that perhaps you suffer from
hyperchondria?

The physical symptoms are always real, but might be "normal" physical signs
which are misinterpreted as more dangerous than they really are.


Placid


Placid. There are also others that have a diagnoisis of Fibromyalgia also in
here. I would like the others with the same illness as me, to step up to the
plate on this one. We are not hyperchondiacs. I am sure there are a few of them
out there though, that fit the description you gave.

Of course we may seem like we are. That is understandable. We do have weird
symptoms, we do have physical pain. We do look normal to others. I do
understand also, there are doctors out there that do not believe in
Fibromyalgia also. Fibromyalgia also runs hand in hand at times. With other
disorders and diseases. Lupus, MS, Arthritis. Many auto-immune disease's and
disorders.

I have studied FM. At times FM is diagnosed, and at a later time, a different
diagnosis is obtained, when new symptoms appear.

I take it as a insult. That you have implyed that the symptoms I listed in the
OP, are also due to your perception of me being a hyperchondriac.

Also, I have other chronic pain conditions along with Fibromyalgia. Are those
in my head too, with your perceptions?

I am on a low carb dieting plan. A way of eating. I have alot of pain, and
illness problems. I come here for support on dieting. I also come here for ways
to improve my pain and illness with improvements on dieting. Got a problem with
that?





  #3  
Old August 28th, 2004, 06:07 PM
Sunshyne
external usenet poster
 
Posts: n/a
Default

Did anyone call in an infectious disease specialist? Painful joints along
with
your other symptoms are frequent with the various tick borne diseases, for
example.

It's a very unreasonable stretch to think that a sudden, acute illness with
multiple symptoms was brought on by a diet you've been on for a lengthy
period.

Susan



I go to a low cost health clinic. I have no health insurance. I go to the
doctor again on Monday. Hopefully we will be able to get referrals out, to
affordable specialists.

I do have a appt. coming for a Rheumatologist.

I am trying to look at all angles. Yes, I have been on the diet for 7-8 months.
I did see big improvement on my health. IBS did clear up. I did feel better. I
was able to exercise. The last few weeks. The last part of this summer. I have
been really sick. I havn't been able to do much at all.

Eating certain meats, can cause Gout symptoms in some people. Dehydration also.


Thanks for the input, greatly appreciated. I will bring the suggestions up with
my doctor next week.


  #4  
Old August 28th, 2004, 06:45 PM
JC Der Koenig
external usenet poster
 
Posts: n/a
Default

Fibromayglia = hypochondria.

HTH

--
Most people are dumb as bricks; some people are dumber than that. -- MFW


"Sunshyne" wrote in message
...
From: "PlacidBull"


"All last week I have not been well. Tired, fatigued, weakness, pain with
Fibro worse, the joint pain."

Sunshyne ...

are you saying Fibro as in fibromyalgia?


Yes, fibromayglia. I also have degenerative disk disease, cervical and
lumbar
hernitated disks.




  #5  
Old August 28th, 2004, 07:24 PM
Roger Zoul
external usenet poster
 
Posts: n/a
Default

Sunshyne wrote:
||| Did anyone call in an infectious disease specialist? Painful
||| joints along with
||| your other symptoms are frequent with the various tick borne
||| diseases, for example.
|||
||| It's a very unreasonable stretch to think that a sudden, acute
||| illness with multiple symptoms was brought on by a diet you've been
||| on for a lengthy period.
|||
||| Susan
|||
|||
||
|| I go to a low cost health clinic. I have no health insurance. I go
|| to the doctor again on Monday. Hopefully we will be able to get
|| referrals out, to affordable specialists.
||
|| I do have a appt. coming for a Rheumatologist.
||
|| I am trying to look at all angles. Yes, I have been on the diet for
|| 7-8 months. I did see big improvement on my health. IBS did clear
|| up. I did feel better. I was able to exercise. The last few weeks.
|| The last part of this summer. I have been really sick. I havn't been
|| able to do much at all.
||
|| Eating certain meats, can cause Gout symptoms in some people.
|| Dehydration also.
||
||
|| Thanks for the input, greatly appreciated. I will bring the
|| suggestions up with my doctor next week.
||

When you bring this up with your doctor, don't mention Atkins...just tell
him/her you've removed/reduced starchy foods, sugar & flour products, and
junk good.


  #6  
Old August 28th, 2004, 09:25 PM
Saffire
external usenet poster
 
Posts: n/a
Default

In article ,
says...
From: "PlacidBull"
ah, ... has it ever been suggested before that perhaps you suffer from
hyperchondria?

The physical symptoms are always real, but might be "normal" physical signs
which are misinterpreted as more dangerous than they really are.


Placid


Placid. There are also others that have a diagnoisis of Fibromyalgia also in
here. I would like the others with the same illness as me, to step up to the
plate on this one. We are not hyperchondiacs. I am sure there are a few of them
out there though, that fit the description you gave.


I have been diagnosted by a rheumatologist as having fibromyalgia. I don't think
my case is as strong as Sunshyne's, but I don't doubt it as a diagnosis. I was
ALREADY treating OTHER things with the same recommendations the rheumatologist
gave me for the fibromyalgia, so the diagnosis didn't have much of an impact on
me other than to frustrate me as to it's vagueness. Sunshyne was also recently
in a car accident (and had one a few years ago, as I recall), and has some very
REAL injuries to deal with, an being overweight only makes things worse.

It never ceases to amaze me how people who are NOT afflicted with multiple
medical problems so blythely dismiss those who are. I had an (older) allergy
doctor once say he thought it was all in my head because I had too many physical
problems for someone my age. I pointed out that I had a) fallen down some
stairs, which led to chronic back problems, exacerbated, no doubt, by the fact
that my right leg is 3/4" shorter than the left one and the right foot is two
FULL sizes smaller than the left one AND only has 4 toes on it, b) had wrist
injuries that required SURGERY, and c) took several medications (including some
prescribed by HIM) that not only gave me severe dry mouth, but also dried out my
sinuses, leading to frequent sinus infections, which was why I was there to see
him that day. How can fever and pus be considered due to hypOchondria? That
shut HIM up and he DID prescribe an antibiotic. Sheesh! HE was the one who told
ME that I was "super allergic" based on the tests HE administered, and said that
I should never have a pet of any kind with fur or feathers because even if I
WASN'T allergic to it at the time, I would BECOME allergic to it within 6 months.
Of all the trees and grasses he tested me for, I was more than a little allergic
to all but two of them. He couldn't believe I had waited so long to be tested
for allergies.

Some people have autoimmune problems and some people don't. I happen to be one
who DOES. I AM more sensitive in some areas than others because of that. I can
often sense low-level earthquakes when others cannot -- I can sense when a floor
in a room is not level when others do not. Low-grade fevers REALLY knock me for
a loop, causing EXTREME fatigue. I had a lupus antibody detected back in 1991
during a ANA panel when an immunologist at Stanford was trying to rule out
autoimmune problems regarding the acute pain in my wrist. Why did I eventually
go to a rheumatologist? It wasn't MY idea -- another doctor referred me based on
my sensitivities, just to rule some things out. I was very surprised when the
rheumatologist told me she thought I had fibromyalgia based on (I think) 11 out
of 18 specific symptoms. I've had one doctor think a specific pain was no big
deal and another doctor say they couldn't BELIEVE I had waited so long to see
someone about the very same pain. I long ago realized that most doctors are
incredibly bored with what they perceive as average, unremarkable problems,
especially if the cause isn't obvious, and they really only perk up when someone
comes in with something dramatic and obvious, like an arrow through the forehead.

Pain from chronic joint inflammation is VERY real. Bleeding from the rectum is
CERTAINLY VERY real. People have different levels of tolerance for pain and
illness for a myriad of reasons, and that's a fact. You know what I wish on my
one TRUE enemy, the only person in the world that I really, truly HATE? Death?
No. Acid in the face? No. Stab or gunshot wounds? No. Terminal illness? No.
What I wish on her is every chronic physical problem *I* have ... and just a
*little* bit more.

--
Saffire
205/149/125 - 5'1.5"
Atkins since 6/14/03
Progress photo:
http://photos.yahoo.com/saffire333
  #7  
Old August 28th, 2004, 10:03 PM
PlacidBull
external usenet poster
 
Posts: n/a
Default

I have chondrosarcoma. I have had my pelvis, hip, and leg removed. I have
experienced pain on a level of 9.5 out of ten over a two year period. I am
not impervious to the pains of others. The one lesson I learned was "do not
ask how do I get rid of the pain?" ask instead "what is causing the pain?" I
have also met those who complain incessently, go from one doctor to another,
from one emergency room to another, pop one pain medication after another
and label it fibromyalgia. If you have a pain, do not label it fibromyalgia.
Find out WHAT it is and then pursue its correction. Just my opinion of
course.

Placid


"Saffire" wrote in message
.. .
In article ,

says...
From: "PlacidBull"
ah, ... has it ever been suggested before that perhaps you suffer from
hyperchondria?

The physical symptoms are always real, but might be "normal" physical
signs
which are misinterpreted as more dangerous than they really are.


Placid


Placid. There are also others that have a diagnoisis of Fibromyalgia also
in
here. I would like the others with the same illness as me, to step up to
the
plate on this one. We are not hyperchondiacs. I am sure there are a few
of them
out there though, that fit the description you gave.


I have been diagnosted by a rheumatologist as having fibromyalgia. I
don't think
my case is as strong as Sunshyne's, but I don't doubt it as a diagnosis.
I was
ALREADY treating OTHER things with the same recommendations the
rheumatologist
gave me for the fibromyalgia, so the diagnosis didn't have much of an
impact on
me other than to frustrate me as to it's vagueness. Sunshyne was also
recently
in a car accident (and had one a few years ago, as I recall), and has some
very
REAL injuries to deal with, an being overweight only makes things worse.

It never ceases to amaze me how people who are NOT afflicted with multiple
medical problems so blythely dismiss those who are. I had an (older)
allergy
doctor once say he thought it was all in my head because I had too many
physical
problems for someone my age. I pointed out that I had a) fallen down some
stairs, which led to chronic back problems, exacerbated, no doubt, by the
fact
that my right leg is 3/4" shorter than the left one and the right foot is
two
FULL sizes smaller than the left one AND only has 4 toes on it, b) had
wrist
injuries that required SURGERY, and c) took several medications (including
some
prescribed by HIM) that not only gave me severe dry mouth, but also dried
out my
sinuses, leading to frequent sinus infections, which was why I was there
to see
him that day. How can fever and pus be considered due to hypOchondria?
That
shut HIM up and he DID prescribe an antibiotic. Sheesh! HE was the one
who told
ME that I was "super allergic" based on the tests HE administered, and
said that
I should never have a pet of any kind with fur or feathers because even if
I
WASN'T allergic to it at the time, I would BECOME allergic to it within 6
months.
Of all the trees and grasses he tested me for, I was more than a little
allergic
to all but two of them. He couldn't believe I had waited so long to be
tested
for allergies.

Some people have autoimmune problems and some people don't. I happen to
be one
who DOES. I AM more sensitive in some areas than others because of that.
I can
often sense low-level earthquakes when others cannot -- I can sense when a
floor
in a room is not level when others do not. Low-grade fevers REALLY knock
me for
a loop, causing EXTREME fatigue. I had a lupus antibody detected back in
1991
during a ANA panel when an immunologist at Stanford was trying to rule out
autoimmune problems regarding the acute pain in my wrist. Why did I
eventually
go to a rheumatologist? It wasn't MY idea -- another doctor referred me
based on
my sensitivities, just to rule some things out. I was very surprised when
the
rheumatologist told me she thought I had fibromyalgia based on (I think)
11 out
of 18 specific symptoms. I've had one doctor think a specific pain was no
big
deal and another doctor say they couldn't BELIEVE I had waited so long to
see
someone about the very same pain. I long ago realized that most doctors
are
incredibly bored with what they perceive as average, unremarkable
problems,
especially if the cause isn't obvious, and they really only perk up when
someone
comes in with something dramatic and obvious, like an arrow through the
forehead.

Pain from chronic joint inflammation is VERY real. Bleeding from the
rectum is
CERTAINLY VERY real. People have different levels of tolerance for pain
and
illness for a myriad of reasons, and that's a fact. You know what I wish
on my
one TRUE enemy, the only person in the world that I really, truly HATE?
Death?
No. Acid in the face? No. Stab or gunshot wounds? No. Terminal
illness? No.
What I wish on her is every chronic physical problem *I* have ... and just
a
*little* bit more.

--
Saffire
205/149/125 - 5'1.5"
Atkins since 6/14/03
Progress photo:
http://photos.yahoo.com/saffire333



  #8  
Old August 28th, 2004, 11:02 PM
Lurker
external usenet poster
 
Posts: n/a
Default


Your doctor is an idiot. Over 8 million Americans alone are diagnosed with
Fibromyalgia (mostly women) and the numbers are rising every day. In
1987, the American Medical Association recognized fibro as a true illness
and it's a MAJOR cause of disability in this world. Unfortunately when some
docs get out of school, that's where their education ends. If you're
fortunate enough not to have it, then I'd get on my knees and thank the Lord
or whoever you're grateful to in life that you don't. Those of us who ARE
unfortunate enough to have it certainly would rather NOT. The latest
research shows that staying away from processed carbs, such as white sugar,
flours, etc...........is a good diet for folks with fibro so I'm not
surprised that there are several folks in this group with it. I'm a daily
lurker here and post seldom but I would think that this being a support
group that folks would want to UPHOLD their posters instead of making them
feel worse than they already do. Just my 2 cents. Sunshyne......you
certainly have MY sympathy and support.........the fibro group here on
usenet is full of some really nice folks (along with some trolls but that's
no different than here) if you're looking for information that will help you
with dealing with the fibromyalgia/pain/lack of sleep issues.........and
there's a scientist named Devin Starlanyl who also has this and has written
several wonderful books on it. here is her link to her site:

http://www.sovernet./~destar

I read the post you made, PlacidBull, where you said you yourself have some
pain issues........all the more reason that I'd think you'd wanna support
others in pain rather than accuse them of being
hypochondriacs...........again just my opinion. Worth about as much as
yours.

A Lurker


"PlacidBull" wrote in message
...
Yes, Sunshyne,

My doctor friends have told me that the medical profession uses the term
fibromyalgia as a code word to signify patients who are suffering from
hypocondria.

Whenever someone tells them that they have been diagnoised with
fibromyalgia, the medical professional's response is ... hmmm ... yes ...

I
understand.

Placid

"Sunshyne" wrote in message
...
From: "PlacidBull"
ah, ... has it ever been suggested before that perhaps you suffer from
hyperchondria?

The physical symptoms are always real, but might be "normal" physical
signs
which are misinterpreted as more dangerous than they really are.


Placid


Placid. There are also others that have a diagnoisis of Fibromyalgia

also
in
here. I would like the others with the same illness as me, to step up

to
the
plate on this one. We are not hyperchondiacs. I am sure there are a few

of
them
out there though, that fit the description you gave.

Of course we may seem like we are. That is understandable. We do have
weird
symptoms, we do have physical pain. We do look normal to others. I do
understand also, there are doctors out there that do not believe in
Fibromyalgia also. Fibromyalgia also runs hand in hand at times. With
other
disorders and diseases. Lupus, MS, Arthritis. Many auto-immune disease's
and
disorders.

I have studied FM. At times FM is diagnosed, and at a later time, a
different
diagnosis is obtained, when new symptoms appear.

I take it as a insult. That you have implyed that the symptoms I listed

in
the
OP, are also due to your perception of me being a hyperchondriac.

Also, I have other chronic pain conditions along with Fibromyalgia. Are
those
in my head too, with your perceptions?

I am on a low carb dieting plan. A way of eating. I have alot of pain,

and
illness problems. I come here for support on dieting. I also come here

for
ways
to improve my pain and illness with improvements on dieting. Got a

problem
with
that?









  #9  
Old August 29th, 2004, 12:37 AM
Saffire
external usenet poster
 
Posts: n/a
Default

In article ,
says...
I have chondrosarcoma. I have had my pelvis, hip, and leg removed. I have
experienced pain on a level of 9.5 out of ten over a two year period. I am
not impervious to the pains of others. The one lesson I learned was "do not
ask how do I get rid of the pain?" ask instead "what is causing the pain?" I
have also met those who complain incessently, go from one doctor to another,
from one emergency room to another, pop one pain medication after another
and label it fibromyalgia. If you have a pain, do not label it fibromyalgia.
Find out WHAT it is and then pursue its correction. Just my opinion of
course.


Then you DO know what it's like to have chronic pain, and if you had symptoms for
a long time before it was diagnosed and treated, it's likely that you AND a
doctor initially thought that whatever was causing your symptoms was due to a
virus and/or a minor or even unknown injury and attributed it to something else.
Pain you have NOW might be attributed to your cancer and subsequent treatment,
even if it's actually being caused by something ELSE.

*I* didn't label my pain fibromyalgia -- a DOCTOR did. I also know of specific
injuries that caused most of my chronic pain. When I don't know, I try to find
out. Frankly, I HATE having a label like that because it IS such a catch-all
and, as such, DOCTOR'S tend to blame problems on THAT instead of trying to LOOK
for the cause. In fact, I usually don't even TELL doctors that I've been
diagnosed with it. I also have multiple chemical sensitivities, and I know what
caused THAT, too. Unfortunately, that, too, is a catch-all, so sometimes I don't
know if I'm coming down with something, or if I'm being exposed to a chemical to
which I'm reacting -- I only know for sure if it gets better if I change or get
away from my environment, unless I get a sudden hot flush across my nose and
cheeks (aka a "butterfly rash"), in which case I KNOW it's chemically related.
If it's really bad (being exposed to a lot of copier toner, for instance), my
entire face will turn cherry red. Some things cause this relatively mild
reaction (newsprint, phenol, formaldahyde) and some cause flu-like symptoms
and/or debilitating fatigue (pesticides, new furniture). Some doctors don't
believe in MCS and label IT hypochondria when it is, sometimes MEASURABLY, an
inappropriate auto-immune system response.

I see your point and I'm trying to make my own, which is that some people are
more sensitive than others, some physical problems are more obvious than others
and just because a doctor doesn't know what's wrong, it doesn't mean that someone
is just MAKING IT UP, which is what YOU are saying when you use the word
"hypochondria". In fact, you seem to be applying it to a situation that is a
catch-22. Is a person making something up or trying to find out the cause of
their problem when they go from doctor to doctor because they are in pain that's
not getting any better and the doctor's don't know WHY or blame it on something
that may or may not be causing it but don't want to bother to look further?
Sounds like the patient is damned if they do and damned if they don't.

--
Saffire
205/149/125 - 5'1.5"
Atkins since 6/14/03
Progress photo:
http://photos.yahoo.com/saffire333
  #10  
Old August 29th, 2004, 01:20 AM
Em
external usenet poster
 
Posts: n/a
Default


"Sunshyne" wrote in message
...
From: "PlacidBull"
ah, ... has it ever been suggested before that perhaps you suffer from
hyperchondria?

The physical symptoms are always real, but might be "normal" physical

signs
which are misinterpreted as more dangerous than they really are.


Placid


Placid. There are also others that have a diagnoisis of Fibromyalgia also

in
here. I would like the others with the same illness as me, to step up to

the
plate on this one. We are not hyperchondiacs. I am sure there are a few of

them
out there though, that fit the description you gave.


Well I'm one of them Sunshyne. When I was diagnosed with fibromyalgia, I
had never heard of it. My doctor explained a lot to me and encouraged me to
learn as much as I could about it so we could work together. Because he was
concerned about the symptoms, he also sent me to a rheumatologist to be
examined and tested for that and other things. The rheumatologist confirmed
the fibromyalgia. If either of them thought I was a hypochondriac, the
whole matter would have been dropped and he certainly wouldn't have wasted
any more of his (or the rheumatologist's) time. Also, if my doctor thought
I was a hypochondriac he'd tell me! Both of them were very sympathetic and
helpful. My GP worked with me on finding the right meds to help with sleep
problems and pain. He explained what seemed to work with fibromyalgia and
why and we experimented to see what was most helpful for me. He also sent
me to a physical therapist and the rheumatologist later set it up for me to
have hydrotherapy at the local hospital. This taught me how to help deal
with the pain and stiffness by exercising. People who think fibromalgia =
hypochondria need to educate themselves. I'd say I wouldn't wish it on such
people, but that wouldn't be the truth.



 




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