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#11
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Take a look at Miryam Williamson's fibromyalgia page.
http://www.mwilliamson.com She also includes a page full of links to other fibro information http://www.mwilliamson.com/links.htm While following your doctor's directions keep in mind that a high fiber low-carb regimen along with daily aerobic exercise will probably be helpful in the long run despite the pain exercise causes. Find a way to keep moving (pun intended) so you avoid the Wizard of Oz tin man effect that comes from inactivity. Hang in there and be sure to systematically killfile the fools who would try and bring you down. Lee Rodgers Lowcarb Retreat http://www.lowcarb.org CHAT http://www.lowcarb.org/parachat.html Low-Carb Connoisseur http://www.low-carb.com Thank you for the links Lee. I understand the Wizard of Oz, Tin man that didn't get oiled. I experienced that last year, before beginning low carbing, and a exercise routine. |
#12
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On Sat, 28 Aug 2004 21:03:03 GMT, "PlacidBull"
wrote: I have chondrosarcoma. I have had my pelvis, hip, and leg removed. I have experienced pain on a level of 9.5 out of ten over a two year period. Very sorry to hear that. What's your prognosis? I am not impervious to the pains of others. The one lesson I learned was "do not ask how do I get rid of the pain?" ask instead "what is causing the pain?" It's funny that you should mention the value of making an EFFORT to get to the sources of pain and health problems BY ASKING QUESTIONS because that was exactly what Sunshyne was attempting to do in this thread. Now if she had done a 'poor me', I might have a different interpretation... I have also met those who complain incessently, go from one doctor to another, from one emergency room to another, pop one pain medication after another Sure, there are more than a handful of hypochondriacs in the world, since you brought it up earlier. And I would imagine a few of those 'supposedly' have fibro. I'm sure many others are mistakenly diagnosed with fibro when they may have something non-auto immune related going on; it does seem to be a rather trendy diagnosis of late. But why would you assume that Sunshyne fits into that category right off the bat in your post? and label it fibromyalgia. If you have a pain, do not label it fibromyalgia. In case you missed where Lee and Saffire explained it to you, unfortunately a lot is still not known about auto immune disorders and the root causes. People used to know little about cancer. Would that have made your chondrosarcoma any less real if you had been born a few centuries ago? Find out WHAT it is and then pursue its correction. Again, little is still known about auto immune disorders. Hopefully, that will change as more research is done. And sunshyne also said: "I would like the others with the same illness as me, to step up to the plate on this one." Okie doke. I had juvenile rheumatoid arthritis in my knees from the ages of 2 to 5 and was crippled to the point that I had to wear leg braces to walk. This all happened about thirty years ago. Fortunately, I just had JRA for three years; it could have been a lot longer. I can still vividly remember the intense pain from going to the physical therapist to this day. I also exhibited some of the symptoms relating to a systemic classification of JRA -- fevers, severe hives, skin rashes, swollen glands. In addition, I was one of the large percentage that never test positive for antibodies. Even though I completely recovered from the manifestation of arthritis in the knees, I continued to have the frequent spontaneous skin rashes/hives, swollen lymph, and unexplained fevers associated with systemic classification. Frequency gradually lessened over time and had mostly ceased by the time I was 10. That's when the symptoms of (whatever? at this point) morphed. The fevers and rashes went away, but then I started experiencing extremely stiff (but not painful) muscles upon rising. The stiffness was always completely gone by the time I took a shower and got dressed and in no way prevented me from being quite athletic in middle and high school. Over time, the frequency of those symptoms lessened quite a bit, just as the fevers and hives had before. However, I developed quite painful symptoms of fibro in my late twenties and was diagnosed as such by a rheumatologist. Part of her determination in this was my previous medical history and family history -- some lupus and also adult onset RA in the bloodline. Believe me, I certainly wasn't looking for some vague syndrome as diagnosis. I would have much rather been told that I had X and could do or take Y for it, just like that. As a side note, I was also exhibiting symptoms of hypoglycemia in that time frame and needed to lose about 30 or more pounds. That certainly didn't help with the fibro. Fortunately, I've been able to eliminate the vast majority of fibro symptomology through LC, regular weight training, and cardio. Didn't happen overnight, but it happened. Also, maintaining a slender weight (low/med low side of optimal for frame per Met Life chart) seems to help considerably. Wheat and grains are a major trigger for me, so I avoid them. Do I really know exactly what the root cause is of this syndrome that I had/have? Unfortunately, no. So I took steps to do what I can do to help make it better. |
#13
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I have been diagnosted by a rheumatologist as having fibromyalgia. I don't
think my case is as strong as Sunshyne's, but I don't doubt it as a diagnosis. I was ALREADY treating OTHER things with the same recommendations the rheumatologist gave me for the fibromyalgia, so the diagnosis didn't have much of an impact on me other than to frustrate me as to it's vagueness. Yes, Saffire, it is a vague syndrome. It is fully not understood. It has no specific cause. It has no specific "fix" Sunshyne was also recently in a car accident (and had one a few years ago, as I recall), and has some very REAL injuries to deal with, an being overweight only makes things worse. I was in a car accident 10 years ago. Which shattered the bone in my right arm. Took a couple surgeries to get the use of the arm back. I think that was the start of the health problems. One of the main causes. I have also been in 2 car accidents of late. 2 years ago, then another one this year. Both rear end accidents, me being the one rear ended. It never ceases to amaze me how people who are NOT afflicted with multiple medical problems so blythely dismiss those who are. I had an (older) allergy doctor once say he thought it was all in my head because I had too many physical problems for someone my age. At the ER last night. The doctors treated me with such respect. I tryed my best to give the them the list of the health problems I am experiencing. And past medical history. They looked at me with awe. They said they have never met a woman like me, with such strength and courage. While in the another cubicle, a guy was there to try and get pain meds for his addiction. Interesting day and night to say the least. I pointed out that I had a) fallen down some stairs, which led to chronic back problems, exacerbated, no doubt, by the fact that my right leg is 3/4" shorter than the left one and the right foot is two FULL sizes smaller than the left one AND only has 4 toes on it, b) had wrist injuries that required SURGERY, and c) took several medications (including some prescribed by HIM) that not only gave me severe dry mouth, but also dried out my sinuses, leading to frequent sinus infections, which was why I was there to see him that day. How can fever and pus be considered due to hypOchondria? That shut HIM up and he DID prescribe an antibiotic. Sheesh! HE was the one who told ME that I was "super allergic" based on the tests HE administered, and said that I should never have a pet of any kind with fur or feathers because even if I WASN'T allergic to it at the time, I would BECOME allergic to it within 6 months. Of all the trees and grasses he tested me for, I was more than a little allergic to all but two of them. He couldn't believe I had waited so long to be tested for allergies. Gosh Saffire. You had a nasty doctor there. I had one in the beginning also. It took so many tests to get the diagnosis. Then what sort of diagnosis is FMS? I had no inner strength and courage like I do now. I learned lessons from him though. What not to tolerate. What to look for in a doctor. Some people have autoimmune problems and some people don't. I happen to be one who DOES. I AM more sensitive in some areas than others because of that. I can often sense low-level earthquakes when others cannot -- I can sense when a floor in a room is not level when others do not. Low-grade fevers REALLY knock me for a loop, causing EXTREME fatigue. I had a lupus antibody detected back in 1991 during a ANA panel when an immunologist at Stanford was trying to rule out autoimmune problems regarding the acute pain in my wrist. Why did I eventually go to a rheumatologist? It wasn't MY idea -- another doctor referred me based on my sensitivities, just to rule some things out. I was very surprised when the rheumatologist told me she thought I had fibromyalgia based on (I think) 11 out of 18 specific symptoms. I've had one doctor think a specific pain was no big deal and another doctor say they couldn't BELIEVE I had waited so long to see someone about the very same pain. I had the first symptoms really 10 years ago. Just aches and pains. Sleeping problems, allergies. I came down with a flu in 1999, havn't been the same since. About the same time, a trauma occured. Our home burnt down the ground, we lost everything. I long ago realized that most doctors are incredibly bored with what they perceive as average, unremarkable problems, especially if the cause isn't obvious, and they really only perk up when someone comes in with something dramatic and obvious, like an arrow through the forehead. LOL, Saffire. Made me laugh on that. I remember too, when first coming onto the board. Back in Janruary. I beleive my first post was titled... Fibromaylgia and Low Carb. You were very supportive to me, and you still are. I apprecitate that very much. Pain from chronic joint inflammation is VERY real. Bleeding from the rectum is CERTAINLY VERY real. People have different levels of tolerance for pain and illness for a myriad of reasons, and that's a fact. That is exactly what I came in here and posted for this morning. I have been handling it all OK. Doing the best I know how to. It all has piled on me all at once. It got to me. So, I asked for input and support. Then I get **** like I am a hypochondriac. You know what I wish on my one TRUE enemy, the only person in the world that I really, truly HATE? Death? No. Acid in the face? No. Stab or gunshot wounds? No. Terminal illness? No. What I wish on her is every chronic physical problem *I* have ... and just a *little* bit more. -- Well said. Thank you Saffire. Saffire 205/149/125 - 5'1.5" Atkins since 6/14/03 Progress photo: http://photos.yahoo.com/saffire333 |
#14
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The AMA says that low carb is bad for you, so it's back to low fat and low
calorie, eh? Are you following the government's food pyramid? Do you always use an asinine appeal to authority when arguing the wrong side of an issue? -- Most people are dumb as bricks; some people are dumber than that. -- MFW "ConnieG999" wrote in message ... "JC Der Koenig" writes: Fibromayglia = hypochondria. Well, I guess the American College of Rheumatology would be interested in your "diagnosis". Fibromyalgia is a diagnosable illness and fully recognized as such. Except in the minds of people who *think* they know everything... Connie ************************************************** *** My mind is like a steel...um, whatchamacallit. |
#15
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I have chondrosarcoma. I have had my pelvis, hip, and leg removed. I have
experienced pain on a level of 9.5 out of ten over a two year period. I am not impervious to the pains of others. The one lesson I learned was "do not ask how do I get rid of the pain?" ask instead "what is causing the pain?" With FMS, its totally different. Different way to deal with. What is causing the pain? Havn't figured that out yet, and the docs havn't totally figured that out yet either. For me right now. Its living with the pain. Side by side with it. Daily. Working along with it. Not becoming disabled from it. Trying to find answers. Trying to figure it out. I also try not to let it overtake "me". Fibromyalgia is not what I am all about. It is just a aspect of me. I have also met those who complain incessently, go from one doctor to another, from one emergency room to another, pop one pain medication after another and label it fibromyalgia. If you have a pain, do not label it fibromyalgia. The sort of people you describe. That is not me. It has been quite awhile since visiting a ER. I have two doctors I am working with right now. My family doctor, and a neurosurgeon. Yet, yes, I have seen the types of people you describe. Find out WHAT it is and then pursue its correction. Just my opinion of course. I have been pursuing its correction. Just my opionion. Placid |
#16
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Well I'm one of them Sunshyne. When I was diagnosed with fibromyalgia, I
had never heard of it. My doctor explained a lot to me and encouraged me to learn as much as I could about it so we could work together. Because he was concerned about the symptoms, he also sent me to a rheumatologist to be examined and tested for that and other things. The rheumatologist confirmed the fibromyalgia. If either of them thought I was a hypochondriac, the whole matter would have been dropped and he certainly wouldn't have wasted any more of his (or the rheumatologist's) time. Also, if my doctor thought I was a hypochondriac he'd tell me! Both of them were very sympathetic and helpful. My GP worked with me on finding the right meds to help with sleep problems and pain. He explained what seemed to work with fibromyalgia and why and we experimented to see what was most helpful for me. He also sent me to a physical therapist and the rheumatologist later set it up for me to have hydrotherapy at the local hospital. This taught me how to help deal with the pain and stiffness by exercising. People who think fibromalgia = hypochondria need to educate themselves. I'd say I wouldn't wish it on such people, but that wouldn't be the truth. Thank you very much Em, for sharing your story. I had not a great doctor for some time. He did cause me to feel like I was a hypochondriac. So the words from Placid Bull, it stung like a mother ****er. Thats OK though. When he judges, he fails to realize, he has 4 fingers pointing right back at him. What you sow, you reap. Thanks Em, for the understanding and support. I answered as many as I could. I will try to answer more tomorrow. I am not well still. I need to get off here. Alone time. I am no longer taking the Vioxx. I am increasing the water intake. I have the sites shared, saved to my faves. Thanks guys and gals, for giving me Hope. |
#17
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When you bring this up with your doctor, don't mention Atkins...just tell
him/her you've removed/reduced starchy foods, sugar & flour products, and junk good. Thanks Roger. Will do. |
#18
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Input please, support
Sunshyne, relax.
Things happen to us all as we age. Has little or nothing to do with our diets, it's just part of life. Accepting and understanding the changes is important. You'll be fine. |
#19
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I also started a new med. Just took it one day. Vioxx. Maybe it ulcered my
stomach. Bingo!!! Vioxx is hell on the stomach - I recently had a bad stomach bout on a similar drug, Mobic. Stop the Vioxx and see how you feel in the next few days. |
#20
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Sunshyne wrote:
| I have had some medical problems come up. And its causing me to | question the Atkins diet now. I will try to make it short and to the | point. I hope to get some input from those in the medical field. How do you know that the problems would not have been much worse if you had not been on the Atkins program? My guess is that your low-carb eating kept you much healthier than you would have been otherwise and minimized your sumptoms. This would make more sense than your negative take, since for most of us the type of symptoms that you describe have all improved over time on Atkins. -- Peter 270/215/180 Before/Current Pix: http://users.thelink.net/marengo/wei...htlosspix.html |
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